Medicine has advanced so much, why is surgery still the only way to diagnose this disease that, according to the WHO, affects 10% of women and girls globally.
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My endometriosis was found on accident. My surgeon found it during my gallbladder removal. During the procedure, he was intending to repair what he thought was an umbilical hernia (not a hernia, my bellybutton just looks weird) and found endometriosis all in my abdomen. I have a suspicion it’s now growing around my spine since I get nerve pain. Thankfully I’m trans and several years into hormone therapy so menstruation doesn’t really happen anymore. I do have to get a hysterectomy eventually, regardless of my gender stuff. It’s genetic. No one in my family that was born with a uterus gets to die with it still in their body.
Sidenote: You would think with endometriosis being commonly passed through genetics, there should be a dna test at least. Of course, I know not all endometriosis is genetic, and that for those people a dna test won’t help. But for those of us where it is, a test would be nice.
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